The hardest thing, so far.

That was hard, saying good night and good bye tonight to Grace and Greg.  My brother brought my nieces and we all had a great visit but you can see the toll that these changes are taking on Grace already.  And Greg too.  He's terrified and stronger than ever at the same time.  We don't get time to talk because one of us is working or taking care of Grace or headed to an ultrasound or going into a meeting with a specialist.  And when they're here, it's only for a short time and Grace is our main focus.  I'm hoping that the weekend will bring more time - time for Greg and I to connect and although we're tackling the big things and on the same page, I want to be there for him emotionally as well.   He is going through this just as much as I am and watching them walk away, knowing he's hurting and struggling to keep it together is killing me.   I know he's got this and I know he'll take care of everything and more.  But everything is different now and we haven't yet reached our new normal.   I cried when they left, but not until they were half way down the hallway and couldn't hear me.  I watched them walk hand in hand, Gracie holding on the railing, going home to try and get back into the natural rhythm of things.   It's been a lot of late nights.  We'll be okay, but tonight was hard.